Resources for Family & Caregivers

An online version of the handbook that is given to each family at the time of admission. CLICK HERE to read.

También está disponible una versión en español. HAGA CLIC AQUÍ para leerla.

An online version of the handbook given to families for our pediatric hospice and pediatric care services at the time of admission is available. CLICK HERE to read.

We want to ensure you and your family are well supported and informed so symptoms can be managed under our care. The National Partnership for Healthcare and Hospice Innovation (NPHI), along with the Center to Advance Palliative Care (CAPC) and Aliviado Health, has developed a special Dementia Care Program to support the home care of people living with dementia. KCH is a proud member of NPHI. CLICK HERE to read.

We want to ensure you and your family are well supported and informed so symptoms can be managed under our care. The National Partnership for Healthcare and Hospice Innovation (NPHI), along with the Center to Advance Palliative Care (CAPC) and Aliviado Health, has developed a special Veterans Care Program to support the home care of Veterans who have served our country. KCH is a proud member of NPHI.

CLICK HERE to read the Veterans Care Guide.

CLICK HERE to view the KCH Veteran Benefits Field Guide for Kansas and Missouri.

We want to ensure you and your family are well supported and informed so symptoms can be managed under our care. The National Partnership for Healthcare and Hospice Innovation (NPHI), along with the American Cancer Society, has developed a special Advanced Cancer Care Resources guide to support the home care of people living with dementia. KCH is a proud member of NPHI. CLICK HERE to read.

Advanced Lung Care Patient & Caregiver Resource Guide
A practical resource for patients living with advanced lung disease and the family members who care for them. The guide explains common lung conditions and symptoms while offering useful information on symptom management, medications, nutrition, self-care, advance care planning, and tools designed to help patients remain as comfortable and safely supported at home as possible.

Advanced Cardiac Care Patient & Caregiver Resource Guide
This guide provides patients with advanced cardiac disease and their caregivers with clear, accessible information for managing heart failure and related symptoms at home. It covers symptom monitoring, medications, diet, self-care strategies, advance care planning, and practical tools for tracking weight, blood pressure, and changes that should be reported to the care team.

Advanced Pediatric Care Patient & Caregiver Resource Guide
Designed for families caring for a child with a serious illness, this guide explains pediatric palliative and hospice care and the support available to children and their families. It addresses care-team roles, communication with children and siblings, quality of life, symptom support, caregiver self-care, financial concerns, and age-appropriate guidance for navigating difficult conversations and care decisions.

The Safe Passage series is a collection of information on topics that are most requested by patients and families. You may view them here and we can provide a supply for you on request.

Safe Passage – Simple Facts About the Control of Pain

Safe Passage – Decisions About Artificial Foods and Fluids

Safe Passage – Restlessness at End of Life 

Safe Passage – When Death Nears: Signs and Symptoms 

Safe Passage – Talking to Children and Teens About Illness or Death

Safe Passage – Understanding Grief

Considering whether hospice care is right for you and your family? Our Choices in Care - A Guide for Your Family magazine can help.

KC North of the River Edition 

KC South of the River Edition